no news is good news, part X
Final entry! All is fine. Eyecancer: you lost!
This blog deals with my personal battle against eyecancer (choroidal melanoma).
all fine. the eye is still hanging in there (excuse the pun). no liver mets, no tumour activity. perfect.
i'm still alive and kicking. had a liver mri today, results are as good as they can be: all clear. happy 2010 to everybody.
all is fine. however checkup time is coming soon. not looking forward to it, although i have a strong feeling everything will turn out fine again.
well, the title applies for me personally.
everything going fine - minus the right eye which is healing very slowly. sight is up and down - but it doesn't stop me too much.
wow, it's been almost a year since my last post. and this time the phrase 'no news is good news' hits the hammer right on the nail. a short rollup:
At the moment there is nothing to be worried about. I'll just keep up with checks in regular intervals to play it safe.
-pj
no such thing as spare time
no such thing as free time
no such thing as down time
all you got is life time...
(henry rollins)
bad news all the way. due to the tumor size and some measurements the doctors were able to do during the tantalum clips operation it was suggested to me to add a chemotherapy for safety reasons even if no metastasis is currently visible. i should start within six weeks. it's my decision. i'll get to meet dr. v. on 11th april to discuss things.
so week one of two is over. i will never forget this week.
the tantalum clips operation is done. apparently all went fine. the operation is done under general anesthetics and lasted for only about 30 minutes. after waking up i felt a bit dizzy and tired but no further problems at all. on my right eye a big patch was applied which is awkward and uncomfortable to say the least. it only has to stay on for about two days so it shouldn't be that much of a problem.
this potential serious illness surely makes me think. a lot more than during normal phases of life. after long consideration i decided to cancel my visit to my good friend leslie in holland. i wanted to visit her and to see some concerts in amsterdam too. would have loved to see low and the dresden dolls. oh well, i did see the dresden dolls once back in december but unfortunately i never had the honor to see low in concert. maybe later?
got to meet dr. s. and prof. z., recognized experts on the topic of eye tumors. to make it short: very minor good news, a lot of really bad news.
the blood values are good as well. actually they are very good, nothing is off track. dr m. at the basel eye hospital is not sure what to think of my case. it's doesn't seem clear right now what kind of tumor it is. after all eye tumors, choroidal melanoma most likely in my case, are very rare: about 6 cases out of 1'000'000 exams.
the pet-scan was a piece of cake. unlike the mri-scan the pet-scan device was not a tube but only a small ring (maybe 50cm thick). basically i had to lie on a strechter and wait till the ring completely based my body. this took a long long time, guess about 2 hours.
i never had to do a mri check before. hardly knew what it's about. i know now. it's scary. you have to lie down and remain absolutely quiet. you are not allowed to open your eyes. your head is fixed. it takes about thirty minutes to do a complete mri scan of the head. that's a long time to think about what's going on. the only distraction are a pair of headphones i received from the doctors. so i go into the tube on this strechter and wait. some music from a radio station is on the headphones. otherwise i'm completely alone in the belly of the mri-beast. this machine is loud and noisy and scary. i try not to open my eyes to see what's going on and i try to listen to the music playing... i count the songs. okay, one typical song on the radio is about 3 minutes. i'm 'already' into song no. 2. 'only' approx. 25 minutes to go. it 8 a.m., time for the morning radio news. bla bla bla another bomb in iraq nn people dead. nice to hear in the mri-beast, my god. why not put in some cd with some harmless muzak? but listening to the news, the weather- and the traffic report in the belly of the mri-beast is, well, is... not exactly nice to say the least. time is ticking ticking ticking and suddenly a voice over the headphones tells me that there are only 5 minutes to go... those minutes also pass and i return back from the void of the mri-belly. of course i have to ask what's up. no answer, the doctor must look at the data first i'm being told. i beg hard that a doctor does a quick check of the data just to let me know that i'm not suffering from a brain tumor. after about twenty minutes dr. g. calls my name. he can't find any brain tumor, it's about my right eye 'only'. sigh of relief.
slept not too well. at the eye hospital i had to wait. and wait. after about 60 minutes i had browsed through all the available magazines. browsed is the correct word, i believe i didn't read a single sentence. getting in a bad mood... after 90 minutes the doctor finally arrives. 'emergency case... colleagues ill (flue time)... sorry for having to wait... hello, i'm doctor h. by the way. lets see what's going on here...' so i sit down, more atropine drops, more waiting. then finally some viscid liquid is put on the ultrasonic device. carefully my right eye is being examined with this 'pen'. i ask what's going on but no answer yet.
my right eye started flickering at the beginning of 2005. today i called the eye hospital to ask if they feel it's necessary to check my eyes. the answer is yes.
this is my personal blog. i'm not special. not more than you, guess not less than you. this blog mainly deals with my personal battle against cancer.